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Is anyone caregiving for someone with Alzheimer's Disease?

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Last Post: Dec 07 2011 08:56 PMby: Patrick

Care4U
Care4U
Member since:
3/31/09

Is anyone caregiving for someone with Alzheimer's Disease?

Dec 04 2009 01:31 PM

How long have you been taking care of them and what is your relationship to them?
KCWW_Boarder
KCWW_Boarder
Member since:
3/31/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Dec 04 2009 02:37 PM

I'm not at the moment, but I had cared for my grandmother for a few years. Things seemed very sad, as she often forgot who I was or even where she was living. How are things going for you?
Mamamor
Mamamor
Member since:
3/31/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Dec 04 2009 09:39 PM

I have not cared for an alzheimer patient, however my good friend was the caregiver for her husband for 2 years. with the help of a professional caregiver at home.it was very difficult even though he was not a difficult patient, I know that some people become hostile & that is sooo difficult, it is never an easy task.
xamor
xamor
Member since:
12/5/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Dec 05 2009 03:09 PM

I am caring for my mother who was diagnosed in 2004, but has been living with me and my husband since 1999. For the most part she is in the mid stages, but depending on the time is how well she connects with "reality". Though she is not a difficult person she can be very obstinent and set in her ways and there is no reasoning with her. When she has her mind set on something it is very hard to make her change or adapt. So we try later and see if time has erased and reset. Humor is the only thing we can work with when it comes down to Alz to keep your sanity.
Care4U
Care4U
Member since:
3/31/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Dec 08 2009 01:26 PM

I have recently read that if someone has Alzheimers and they insist something is true that really isn't- as in the case of a deceased person being alive........the best way to handle this is to go along with what they are saying.
Doing this will help them remain calm and before long the subject will come up again.
DannyL
DannyL
Member since:
3/31/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Dec 19 2009 08:05 AM

I have not cared for a love one either with Alzheimer's,but I'm helping my Mother through a difficult time.I have to say after experiencing what I have,that I cannot praise caregivers enough.I see how mentally and physically it wears on one.We should all stand when a caregiver comes into a room.
Mamamor
Mamamor
Member since:
3/31/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Dec 19 2009 04:56 PM

Kudos to you...absolutely stand & cheer!
Mamamor
Mamamor
Member since:
3/31/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Dec 25 2009 10:49 AM

MERRY CHRISTMAS toALL the caregivers everywhere.
lach61
lach61
Member since:
2/18/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Feb 18 2010 04:25 PM

I have been Primary Caregiver for my m-i-l, who has AD--since Sept. 2008. I can see the condition getting worse. She now has a super heavy flow of urine at night. I have found that this is typical of AD patients. I was reading some of the posts where you are supposed to "be where the patient is" but I can't always do that. If I did, I would crack up myself. I know you are supposed to make it easy for yourself--which I'm all for that--but at the rate of losing my sanity--I don't think so. My m-i-l goes to an adult day care facility and has current events. I do the same thing. Sometimes, she thinks she's a little girl and sometimes she thinks she's a wife and mother (where her kids are still growing up). One time she thought my husband (her son) was her father. My husband couldn't deal with this and frankly, neither could I. We just left the room for 5-10 minutes and she forgot all about it. Sometimes, I have to be 'frank' with her when she brings up, "Where is my husband?" Other times, I tell her he's resting. I need to be truthful with her or she won't trust me. You just have to take it one day at a time.
granddaughter1
granddaughter1
Member since:
11/7/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jun 05 2010 10:33 PM

My parents just finished a year-long addition to their house to move in my grandma and grandpa. Grandpa has Alz. He is in a pretty advanced stage. My daughter and I also live with my parents. I am my grandparents' POA for all financial and legal matters. My mother also has three brothers who have helped a lot in the past year while we were preparing the house for Gma and Gpa. My grandpa has good days and bad days. On his good days he is very chatty. On his bad days he doesn't want to cooperate with my grandma for anything. He will soak himself at night and he is unwilling to let her change his clothes or the bed linens. Needless to say, it is wearing my grandma out. My parents work full time and we are exploring the option of an in home aid for a couple of days a week to help grandma and to educate all of us on how to handle grandpa's lack of cooperation. He is difficult to communicate with and does not make much sense when talking about anything. He doesn't tell us when he has to use the restroom and he wears Depends all day and all night. Alz is a terrible disease to witness and I cannot imagine what it must be like to live inside your own head with it. I pray for everyone who is afflicted with this disease and for all who care for someone with Alz.
Trish1
Trish1
Member since:
11/11/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jun 07 2010 02:07 PM

My husband and I are caring for my 83 year old mother who has been diagnosed with ALZ. It is very difficult because we have no respite care. I have two sisters who have removed themselves from the situatuion, no matter how much I beg to them that we need help. My mom is very mean to my husband, who is her primary care giver, as I work full time and I take care of her at night. No matter what the situation is, she is not happy. It can be her favorite food or show etc. she doesn't enjoy anything anymore, and it has made our life a living heck. I pray everyday, and I know that God has given us this task for a reason. We lover my mom so much, which makes it so hard.

[Edited by: Moderator2]
Learning
Learning
Member since:
1/10/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jun 09 2010 08:27 PM

My mother has alz., in denial about incontinence. I tried to have her wear depends and she gets mad, says she doesn't pee on herself, and if I insist she wear them, she pulls all the stuffing out. Needless to say, I just gave up. She can't make it from the bedroom to the bathroom from waking. Someone told me Depends makes a panty that has the padding sewed in, but not as effective. Has anyone heard of these, where can you get them, and any suggestions?
Cherlann
Cherlann
Member since:
7/2/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jul 02 2010 11:43 AM

I am caring for my husband recently diagnosed with Alzheimer's. He is an insulin dependent diabetic and has severe neuropathy in his feet and legs. I work a full time job so I must care for him "away from home"
Cherlann
Cherlann
Member since:
7/2/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jul 02 2010 12:27 PM

I am caring for my husband and working a full time job too. I make sure the house is "safe" for him and I give him morning meds before I leave for work each day. He is an insulin dependent diabetic and he does his morning glucose test before I leave each day as well. I determine his dosage of insulin and have it ready for him when he eats breakfast (after I am gone) He keeps his cell phone with him at all times so that I can reach him and he can reach me (or 911) during my work day. We sold my car and I use "his" car for work so he cannot drive when I am gone (he doesn't drive at all now at anytime--I drive ALL the time) Due to severe neuropathy in his feet and legs walking is difficult for him so he doesn't "wander" outside the house when I am gone. He can shower and shave by himself and I leave him towels etc for his shower each day and lay out clothes for him to wear. I set the breakfast table for him (including his vitamins and insulin dosage) with his utensils so that he takes them each day. I call him several times a day to be sure things are OK at home.
Pamela Toner
Pamela Toner
Member since:
4/5/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jul 03 2010 06:04 AM

I am taking care of someone with alzheimers. Its my husband. He has had it since 2004. the last year has been the worst because he has declined alot. at this point he can not doing anything for himself. I do everything. in the last 3 weeks he mostly stays in bed. I get him up in the wheel chair and he starts to fall asleep and he has to be put back to bed. I would not not change anything as far as taking care of him. I hate to see him this way but I will take care of him as long as it takes
4bandit5
4bandit5
Member since:
7/24/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jul 23 2010 10:21 PM

My husband has vascular dementia. He had 2nd stroke in December 2006. Has been violent. On Meds. I still have him at home despite advise to the contrary. He was hospitalized in 2009. I was not happy without him. Also caring for my youngest granddaughter. Father in jail, mother in care facility. I work full time. Have a live-in to help with both of my charges.
janimar
janimar
Member since:
7/26/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Jul 25 2010 09:30 PM

I am the primary caregiver for my mother and have been since 2007. I left my job to come back home and care for mom with the blessing and support of my siblings. Mom was diagnosed back in the mid 90's but we saw three years ago that things had changed and she couldn't care for herself well anymore. Mom has 4 children who all help especially one sister who helps and allows me to teach part-time two days aweek by watching mom. It has been my joy though there are definitely challenges
scandiskwxp9x
scandiskwxp9x
Member since:
3/31/09

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Aug 12 2010 11:40 PM

my father has Alzheimer and well just we in the family are trying of do the things a bit, nice for deal with this illness, sometimes is hard to deal when they gets mad by something.
NEgirl
NEgirl
Member since:
8/26/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Aug 26 2010 06:36 PM

Yes, I am caring for my husband with Alzheimer's for the past 10 years. I have a full time and a part time job. He attends an Adult Day Care 3 days a week which helps me feel like he is getting some social interaction. He is in the late stages of this disease. I do everything for him except he can feed himself, as long as it is finger type food since he does not use utensils. He is calm, which makes taking care of him better than him being abusive both physically and/or verbally. He doesn't speak at all.
mama pat
mama pat
Member since:
8/29/10

RE: Is anyone caregiving for someone with Alzheimer's Disease?

Aug 29 2010 01:40 AM

I have been caring for my husband for about 1 1/2 years. In the last 5-6 months he has gone from early stage to the beginnings of mid stage. We are "playing" with his medication dosage to try to cut down on the hallucinations. He is up at least 1-2 times at night and needs assistance to change his depends and pj pants. This is a very unforgiving, relentless disease. PS - did I also mention that I work full time??? I just started him at an adult day care center to ease the stress. Hopefully it will help. Prayers and good wishes to all caregivers.

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